COPD and Alpha-1: A patient’s journey

COPD and Alpha-1: A patient’s journey

Season 5 – Episode 3
with Nathalie Roussin

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Welcome to a new episode of Season 5 of the Expand Podcast, dedicated to alpha-1 antitrypsin deficiency (AATD) and COPD.

About this Episode

In this touching and inspiring episode, we hear from Nathalie Roussin, who shares her experience with COPD and alpha-1 antitrypsin deficiency. She talks about the onset of her disease, the challenges of diagnosis, and how she learned to live life to the fullest with a chronic illness.

In addition to her personal journey, Nathalie discusses the importance of pulmonary rehabilitation, social support, and professional adjustments in maintaining her quality of life. Through her story, she reminds us that behind every diagnosis is a person with dreams, commitments, and remarkable strength.

Today You Will Learn:

  • The role of early diagnosis in COPD management
  • The concrete benefits of pulmonary rehabilitation
  • The importance of emotional and social support
  • How to live actively despite a chronic illness
  • Nathalie’s tips for better communication and engagement in your health

Our Special Guest

Nathalie Roussin has been living with COPD and AATD for several years. Thanks to her determination, openness to help, and participation in rehabilitation programs, she has been able to adapt her daily life while maintaining her passions and commitments. Her story is a call for understanding, prevention, and above all, hope.

Resources to go Deeper

  • Living Well with COPD – AATD Module: Create your free account to access our new interactive modules on COPD (updated in April 2025). Register now
  • Canadian Thoracic Society Guidelines on AATD: Read the latest clinical recommendations. Read the full article
  • AlphaNet Canada: A patient organization dedicated to informing, supporting, and advocating for people living with AATD. Visit the website

RESPIPLUS™ received support from Takeda Canada to develop an informative podcast series specifically tailored to AATD. This initiative aims to:

  • Educate healthcare professionals about the latest advancements in AATD management
  • Empower patients with accurate information on accessing resources within the Canadian system
  • Foster a supportive community for individuals living with AATD
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Collaborating Organizations

This podcast series was developed with the valuable collaboration of several organizations committed to improving care and awareness for individuals living with Alpha-1 Antitrypsin Deficiency (AATD):

  • AlphaNet Canada: Supporting patients through education, advocacy, and peer support. alphanetcanada.ca
  • Innomar: An organization that specializes in helping patients access complex therapies across Canada.
  • PPTA: The leading global organization advocating for plasma donation and ensuring the availability of life-saving plasma-based treatments.

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